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|Social Fundraising Campaign: Pulmonary Interstitial Glycogenosis|
Money Raised: $975.00 Campaign Goal: $50,000.00
The cells of the body use glucose, a sugar, for energy. Most cells of the body use glucose from the blood, but it can be stored in a larger molecule called glycogen. Glycogen is found in large amounts in skeletal muscle and the liver and is used to supply energy to the body when needed. It is not typically found in large amounts in other cells of the body.
Pulmonary Interstitial Glycogenosis (PIG) is caused by an abnormal accumulation of glycogen in specific cells of the lung. These cells are located in the interstitium, the space between the air sacs in the lungs. The excess glycogen leads a thickening of the this space, making it difficult for oxygen to get from the air sacs into the bloodstream. There are no FDA approved treatments to halt the accumulation of glycogen in the lung tissue and more research needs to be done to understand why this occurs. We need your help to find out more about this devastating disease!
Disclaimer: Any funds donated in support of a patient or their family cannot be used to fund direct medical costs or be given to the family to cover medical or other expenses. Instead, it will be used to support the efforts in that patient’s diagnosis to benefit all children that share that diagnosis. For every dollar that is donated here, 70% will go directly to PIG programming. The remaining portion will go into the general fund to be used where it is most needed.